Update, More Soon

With a hubby this good, 2 is better than one.

I wrote about the leaves burning and stopped my post

& went out , started a leave burn in my vented can..

I am WAY to OCD

Rich & me goofing off with I photo ..we are just a couple of kids

Rich calls me gigglypuss.

LOTFLMAO

I have so much too share I may have to post more than once.

On the deck, enjoying my Nestle that keeps me peaceful.

The leaves are changing and falling. Is that why

Autumn is referred to as "Fall"??

I love this season, cool crisp air, leaves crackling under your feet,

the smell of burning leaves and moss.

Hello!! I am back from Steroid Hell!! It was WICKED.

I am on a low dose & hopefully totally weaned off

soon. I had Gamma Knife Surgery on 3 of the first batch

of my Brain Mets. (5).

They have been through Gamma Knife Surgery, Whole Brain Radiation & a second

Gamma Knife Surgery. Right now those tumors look the same..no larger.. no smaller

but I will be getting another MRI soon, just to monitor any changes.

If these tumors don't decrease in size or start growing again, the next step

is Brain Surgery. Just drill where each tumor is , remove it & move on to 2

& 3. I'm all for that. Get rid of them & move on. I'd be in hospital for maybe

5 days, as one is a bit deep in. My balance is so off, I tumble from a

stooping position, I can't walk a straight line unless I am walking with

my arns at my sides. It's ok, I can deal .

My friends have to keep a close watch on me & my belongings. The 2nd

thing I did at the

"Fine Art Fair" at our river front, was lose my wallet with all my ID, cards, money,

insurance card EEEKKKK.

My BFFs Marcia & Michele ..Michele stayed with me, while Marcia scouted

the last place, I stopped .. It was there!!! They thought it was a little boys.. Teehee, I love it. The ladies at that table were

selling raffle tickets. No I didn't win, shoot.

I've more to post..check back .

Blessings

LIFE

Brain Tumors are TOAST

I'm home!!

Here's my bandaged head from the screw holes

Just four two in front two at the back side of my head.

Two pumpkin heads.

I convinced Rich to take a picture of me.. I'm the one WITHOUT

the lights.!! Don't you love my Hannibal Titanium Mask??

After about 7 hours of procedures, meds, IV's, MRI, Gamma Knife procedure planning

and 15 minutes of the Gamma Knife....we are home. The tumors should have been

burnt senseless and the tissue will just be absorbed by my body.

All went well ..I had the same nurse..same Gamma Team from last July

a new Neurosurgeon ( Click here to read about *and see* Dr. Klopfenstein) and a Resident .

Piece of cake compared to the Whole Brain Radiation &

the first Gamma Knife.

OCTOBER IS BREAST CANCER AWARENESS

EDUCATE YOURSELF, GIVE TO KOMEN FOUNDATION,

RUN A RACE, FEEL YOUR BOOBIES

TELL A FRIEND ABOUT MY BLOG

I can offer hope ..experience, what to expect and prayer. I'd

love to be someone's "Breast Friend"

I have a new neurosurgeon and

he's handsome.!!! LOL

I go in tomorrow at 5:20 AM, Rich will go also.

They will do the Gamma Knife procedure and

just ZAP that cancer out of there.

Doctor says check ups every three months are

essential and if I have more cancer lesions

every 6 months or every year..we can

handle them. I like his attitude.

I'll try to get Rich to take a picture

of me in my Hannibal mask tomorrow.

I may be gone all day, so I'll post later

this week.

The sun is out, the bugs are swarming and

I'm going outside to enjoy it.

On another note, Hunter is doing great!!

If he keeps progessing as he has he may

be released from the hospital in a week or so.

Check his blog

My BFF Marcia (Hunter's grandma) had a birthday Saturday..don't know

why she'd disclose her age, but she did.

fondly,

Prayers Please

My little deer friend, she looked when I opened the porch door.

I know I've been silent for a bit.  After I finished the Whole Brain Radiation, things just got

icky. I was so scattered for so long, and then IT set in. The nausea, the not being able to eat. The NOT SO GOOD attitude.  The sleeping all day and night.  

Here it is two months later and I'm not better. 

I've lost 20 lbs since November, I go out for dr appts and that's it. Rich did all the Christmas shopping that got done .. ALL OF IT.  

I did go to the docs and go again next week. I had another Brain MRI last week and it showed NO new tumors and the ones that are there are smaller.  Great news!!

We are trying to get the nausea under control. It is much better, but food..YUCK..I don't like anything.  I do eat something each day..but I can't eat much.   

The worst part, I am NOT all happy ..not mad or angry..just feel like I've lost my lust for life.  My dear hubby has been so good about it.  He lets me do what I want, doesn't push, except to make me eat.  

I am not trying to starve myself..I want to eat. 

SO..I am asking for prayers for ME..That this will get better..I can't keep losing weight..and that

my joyous attitude will return.  I want to be positive like I was before. 

I don't talk on the phone ..cuz I just have not much to say..I  WISH I knew someone like ME..who has gone through all of this and could share with me ..but alas..I know

no one....If you know of someone who has stage 4 breast cancer, with brain mets ..and radiation

would you ask them if they'd share their experience??

I'm crying now..maybe this post did ME some good.

Love to you all

Deena